Not a single veteran of the RSD/CRPS community can say their diagnosis did not change their lives in some way. Many faces uncertainty, job loss, hobbies no longer joyful or even possible dependant on the activity. But finding life after diagnosis, be it with CRPS, cancer, diabetes, or really anything … Continue reading
When you pull a rubber band to its furthest point, what happens? It breaks. But what if our bodies are that rubber band and our pain is constantly pulling our bodies needs and our lives we try to live in, in two different directions. Eventually something will give. And at … Continue reading
This weekend I got to enjoy the movie Doctor Strange with my family. I have always been a major comic book nerd and when there is a Marvel or DC movie I am all over it. Benedict Cumberbatch’s portrayal of Doctor Strange was amazing but not because of the character’s … Continue reading
Hi my name is Complex Regional Pain Syndrome… some friends who have known me for a very long time call me RSD or CRPS…… I’m an invisible inflammatory disease that attacks your sympathetic nervous system. I am now velcroed to you for life. If you have CRPS you hope for … Continue reading
This is Bill.
Bill isn’t part of the CRPS community but he told that his Aunt had CRPS.
Instead of judging her for her sudden inability to join family functions he is empathetic.
He calls his Aunt and asks how he can help.
He asks her questions about her condition. He makes others aware of CRPS.
Bill is helping and making a change.
Please Be Like Bill!
Please share awareness of CRPS.
No Judgement! No Hate!
The tough week found me back to back for about a month. I became angry at myself, the world, the flares. They took me down into a dark place that I hadn’t visited in years. My anxiety flared. My anger became worse. I began to hide from everyone. I experienced … Continue reading
With CRPS there are so many systems that can be effected and so many ways it can manifest uniquely for each patient. Making identification and treatment plans to be difficult to identify. According to Wikipedia the snowball effect is: a process that starts from an initial state of small significance … Continue reading
I am a liar… In day-to-day life there are so many roles we have to play. For me these are wife, daughter, sister, aunt, niece, employee, advocate and one I feel is a “dark mark”, patient. Most of these roles depend on me falling into parameters and meeting obligations. I … Continue reading
Dear Workman’s Comp, Yet another night goes by since I won my case and still my medication stays locked away in the vault called the pharmacy. I was injured seven years ago. It wasn’t even my fault. I had to fight and prove I was really hurt. I had to … Continue reading
A New Study out of Aalto University In conjunction with researchers from Helsinki University Hospital and Harvard Medical School , a study has shown a surprising connection that excites us here at RCDOM. Their study consisted of 12 people with CRPS and 8 people with another form of chronic pain. Upon comparing … Continue reading