When you pull a rubber band to its furthest point, what happens? It breaks. But what if our bodies are that rubber band and our pain is constantly pulling our bodies needs and our lives we try to live in, in two different directions. Eventually something will give.
And at first, it’s painfully obvious to our friends and families that live with us. Our ability to sleep is going, going, gone! But what we don’t always see, is the full impact our sleep really has on us in our every day lives before having RSD/CRPS.
On healthline.com, they highlight what a lack of sleep can cause. And it isn’t a short list. As a matter of fact, a number of things we frequently refer in chat to as being part of the CRPS itself, but not only can some of the issues be blamed on the medicines we take, but many can be blamed often directly on the sleep we aren’t getting.
Sleep is a critical part of our bodies healing process. It helps it regulate our metabolism, helps our brain recover from all that we put it through during the day, helps our body stay stronger, and fight against the worlds many colds, flu, and viruses out there.
So if you haven’t discussed your sleeping issues with your doctor, maybe put this on your list. Because while the avalanche might start with someone yelling called CRPS in the mountains, much of the snow, is that sleep we aren’t getting.
With CRPS there are so many systems that can be effected and so many ways it can manifest uniquely for each patient. Making identification and treatment plans to be difficult to identify.
According to Wikipedia the snowball effect is:
a process that starts from an initial state of small significance and builds upon itself, becoming larger (graver, more serious), and also perhaps potentially dangerous or disastrous (a vicious circle, a “spiral of decline”), though it might be beneficial instead (a virtuous circle). This is a very common cliché in cartoons and modern theatrics and it is also used in psychology.
One system that can be affected that has been asked about recently is the optical. The eyes can be affected in varied ways. Everything from just blurry vision, to reports of early onset of cataracts, right down to needing 20% or less full wrap sun glasses to address severe light sensitivity.
The reason I mention the snowball effect is that while we might not want to accept or acknowledge our decreased vision. We are putting ourselves at risk and not even realizing it. If we have decreased vision, we might purchase or prepare food that is moldy. We might wash dishes and not see the food remains that have not come off the dishes.
Life is full of different challenges and we must find ways to overcome. Even if we don’t know we are dealing with them yet. So consider this a little reminder
Make sure you have REALLY good lighting when washing and inspecting dishes both. Suds (invisible to us but other family can see) can hide debris when rinsing is completed as far as we can see.
Soak your dishes before washing to help get off anything that might be dried on, off easier.
Consider keeping a magnifying glass by the kitchen sink.
If you have glass dishes, consider switching to plastic.
Many get shaky hands and makes easier to drop.
Many have difficulties identifying where their hands are and might grip too tightly.
And lastly you might want to consider doing this for yourself, because if we eat bad food, on dirty dishes, we increase our risk of getting sick.
And for those who have heard rumors, soon we’ll be launching our recipe site. Things you submit to us that you have found making is easier for you, or that can be bulk prepared and made for those REALLY bad days where even microwaving is the bare minimum you can do.
QUESTION: Even though I am a flame of burning heat, I also experience extreme ice (freezes), coldness in my feet and ankles. The cold hurts so much that I heat up rice bags I’ve made to warm them up or I cannot sleep until they are warm enough to allow sleep to finally come to me for a few hours (never more than 2 hours continually). Is this normal?
You can find them here. Why did we put forums on our site you ask? Well, we went with this option after users pointed out”wall” posts to our Facebook were public and their family and friends were notified and we wanted to include our Twitter and Google Plus families.
You will find two forums, but you will not see anything in the “support” forum. Users can read and browse through posts made by registered members in the public forums without signing in.
For example, one of the posts I made, Weighted Utensils, was a topic that came up during A.M. Style’s radio show tonight. This was discussed as one of the items you can use at home to help counter act one of the conditions side effects, shaky hands, to help give them some control over their life again.
But until you sign up and are approved, you will not be able to post, reply, or see the support forum. Our reasoning is that our private venting needs to be among those who can be moderated. Though we would hope that this is used in a healthy way, we can and will address issues should they progress in a negative way against others or ones self. Moderation will be limited as we ask you help by self managing your posts before hitting enter.
If you apply for an account, please be aware attempts to avoid data breaches are always made by administrators, but we will never intentionally share your information with anyone. Also know that approval is based on your user ID and email address having enough factors to suggest a non-automated system created the account. But there are steps on how to make sure your account is approved in your email after your first submission. Please use these steps as this helps speed up our processing time.
Otherwise, this could be a few days/weeks dependent on the administrators availability and with as there are up to 50 bots applying for access every day this can be a difficult challenge to try to NOT accidentally mistake a valid email address/user id combination from the bots. So if you do not do this step but your account is denied in error you will get another email with the form you can fill out again for us to recover your account before deletion.