Hi my name is Complex Regional Pain Syndrome… some friends who have known me for a very long time call me RSD or CRPS…… I’m an invisible inflammatory disease that attacks your sympathetic nervous system. I am now velcroed to you for life. If you have CRPS you hope for … Continue reading
With the new website comes more options, more privacy, more that we want to offer. Accounts: First of all, if you have a WordPress account, you can use that same account to log in here. If not, or you don’t want to use it, you don’t have to. Profiles: You can … Continue reading
I’m Maria; I’m a wife and mother, fashionista and shoe enthusiast. Not all of my days are bad, but no one knows about the really bad days because I hide them. Often, I feel like my CRPS has stolen my sense of self. I have a great doctor and on … Continue reading
My child has had CRPS for a few years now! It’s in the foot, ankle, and hand but really bad with pain in their ear( permanent headaches, nausea, vomiting, dizziness, and fainting)! They’ve started taking some medicine which really improved the joint symptoms; the pain is still constantly there but it’s easier to deal with. Then they have more … Continue reading
QUESTION: Even though I am a flame of burning heat, I also experience extreme ice (freezes), coldness in my feet and ankles. The cold hurts so much that I heat up rice bags I’ve made to warm them up or I cannot sleep until they are warm enough to allow sleep to finally … Continue reading
RSD Angel Asks: So a patient had to change their providers, but has a significant gap (at least a few more weeks) between medicine running out and their first appointment. Their having a lot of extremely unpleasant side effects. What have you found that works for you to get by … Continue reading
For those who have not heard, our great friend and huge supporter A.M. Styles a started a newsletter to bring hope, laughs, and new ideas has come to the presses. For the last 9 months, he’s been publishing his newsletter to help get some great inspiration, news, information out to the community. With … Continue reading
Hi my name is Breanne aka “Brie”. I am 35 years old. I live in California with my husband and 3 boys. I also have 2 dogs. I have always been a very active person and love cooking and baking. I loved chasing after my crazy boys and being out … Continue reading
Who is Cliff? My name is Cliff Ansteth, I am a 31 year old father of 4 great kids and a husband to a loving wife. And I once loved to work with my hands, but I have a rare autoimmune disease known as CRPS (Complex regional Pain Syndrome) also known as RSD … Continue reading
Please post answers on RCDOM.org so that people on other sites can see the answers as well (this is to avoid only Facebookers seeing the Facebook answers, the Google+ users only seeing the Google+ answers, etc).
How do you respond when people ask what’s wrong with your foot/hand/limb/whatever and why it hasn’t “healed” yet?