About Us

We started off as a dream!

So many patients are disabled and we here wanted to remind not only ourselves but our fellow angels that life is still worth living.

Why we decided to call this organization “RSD/CRPS Doesn’t Own ME” is because, yes, we have RSD/CRPS but that doesn’t mean that we are less than amazing people. We have goals and we have dreams and no matter what people will try to tell us, we are worth more than gold or silver.

We deserve to wake up each day and smile. We are more than just patients, we are mothers, fathers, daughters, sons, aunts, uncles, nieces, nephews, grandchildren, grandparents, and more greatly we are unique. We are what we allow ourselves to be and if we allow a big bully like RSD/CRPS define who we are, then that is wrong!

We are strong! We walk through fire 24 hours a day 7 days a week, but we are still here. We are still smiling and living life. Albeit a little differently than before, but you can only make coal into a diamond through a lot of heat and pressure!

We find something each day to be thankful for. We try our hardest to get through and not let anyone dictate to us what we should be doing. We control our pain by what we do, not the other way around.


We are the RSD/CRPS Angels


We are fighting for a cure!