RSD Angel Asks: Medicine gaps

RSD Angel Asks:

So a patient had to change their providers, but has a significant gap (at least a few more weeks) between medicine running out and their first appointment. Their having a lot of extremely unpleasant side effects.

What have you found that works for you to get by when you’re stuck in a window of time without you’re medicine?

3 Replies to “RSD Angel Asks: Medicine gaps”

  1. I have had CRPS for 15 years this month. Only in the last few months have I been seeking out support groups and help. My thoughts of escape had come to a dangerous point and I had to find if there was any hope at all. I joined a support group on line and drove almost 4 hours to attend a a meeting for support. It has been invaluable to me. I was diagnosed about 6 years ago, & was told to see a psychiatrist to learn to live with pain because there was nothing that could be done, & to come back in 3 months. I never went back. I’m on depression medication and take very little medication for pain, but I struggle every day to live with this. I don’t know how much I can live with any longer. I’m not suicidal, but I need help. I haven’t filed for disability because the thought of going to more doctors is so frightening. I’ve been accused of drug seeking and just faking this pain. I need to know how to be my own advocate. How do I find financial help? I desperately need any help or advice you can give.

  2. Be realistic and get yourself to the Emergency Department. Your pain is real, it is not in your head and you need to keep it managed. If you previously used medication, be responsible for your Disease/Synsrome and ensure you do not run out of medication, and for the sake of the example whereby the said person is changing doctors go to the emergency department immediately and get back on your medication otherwise your flareup will take a lot longer to control and manage. Good luck šŸ™‚

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