My child has had CRPS for a few years now! It’s in the foot, ankle, and hand but really bad with pain in their ear( permanent headaches, nausea, vomiting, dizziness, and fainting)!
They’ve started taking some medicine which really improved the joint symptoms; the pain is still constantly there but it’s easier to deal with. Then they have more medicines for a stomach pain and nausea and has been on medicine for migraines for 6 weeks now.
My child copes really well with these symptoms when they are all the time but when suddenly they worse, they communicate with the teachers at school that symptoms are extra bad and most of the time they are letting her leave the lesson.
- As a mom, how do kids cope trying to deal with this and going to school?
- What can I do to work with school (who are probably going to get fed up in the end) about the need to get out of class?
- I get the impression that they think that as soon as my child feels a remotely sick its communicated to them. But this is not the case, as my child actually feels bad constantly and only tells them when it has progressed to the point my child’s has blurred vision and head is spinning!!
Any advice on how to help would be really appreciated!