In 1993 I mopped my kitchen floor. The phone rang, I ran to answer it and slipped across the freshly mopped floor. My ankle snapped as I tried to catch myself from falling. Went to a quick care facility which the doctor said nothing was broken. He wrapped it in an ace bandage gave me crutches and sent me on my way. That following week I returned to work, which I worked for a hand surgeon and occupational hand therapy clinci. I worked on the therapy side as their receptionist. The head therapist said I should see her friend a orthopedic doctor to make sure it wasn’t broken. Sure enough he said there is a hairline fracture and the achillies tendon was damaged. He put me in a cast for 2 months. A couple weeks out of cast I just had to go play baseball, as I have played since I was 7.
The first time I ever slid into first base(was not supposed to do that), and again I snapped that ankle and reinjured the tendon. This time they gave me a walking cast for 3 months. Again a few weeks after being out of that cast I was playing on the play ground with my children and slid down the pole and landed right on that same ankle and yes reinjured it all over again for the 3rd time within a 1 year period. I never healed right after that one and was never able to play my beloved baseball ever again. The urges I still have to want to play this game I’ve played my whole life. Within another year I started working for a pain management doctor. I had just seen another orthopedic doctor who wanted to attempt exploritory surgery because he had no idea what was up unless there was a bone fragment or something going on that wasn’t showing up on any xrays/MRI’s/CT’s/Bone Scan/Body Scans and Ultrasounds. Thank God I went to work for the Pain Management doctor who said why don’t you let me do a sympathetic block and make sure you don’t have RSD. I thought OMG I have seen patients come through therapy many times and I sure hope not. The block did prove my RSDS although I was lucky it did, it doesn’t show for everyone. Thank God I didn’t go through that surgery as we all know surgery is very bad for RSD’ers. I have since been through the ringer on test/injections/therapy/medications and other various things. 1996 I had a SCS implant trial/implant/revision. This did help me very much and kept me working and dealing with the pain for a few years. 1998 I was told by the doctor and his wife that I should no longer work as I was throwing up every so often, in terrible pain and on medication that was getting extensive. So I filed for disability and it took me 1 year to get it. I was devastated to no longer be working. I loved my job was paid very well and did not want to leave but had no choice. By 2001 RSD had spread through other leg and upgraded SCS was implanted for both legs. Only worked for one year longer then caused the pain to be worse when on. Also had noticed back and rib pain that felt like my legs. They will not remove the implant and through out the years the RSD has spread full body. I and Doctors think it is because of the implant. As RSD’ers we know surgery is a no no unless absolutely needed. However there is no proof that the implant caused this to happen, but I have spoke with many who have had their implant for years and hear the same story. I know have Stage 4 RSD Full Body and have had to learn to live with it. I went through a program that is similar to work hardening, with PT and OT, Wood shop class, Psychology visits and bio feedback. This was an all day class for 2 months. Of course there were certain breaks they allowed me to take as I could no longer go to work but this showed me how I did not have to do anything all at once. How if I only need to wash one dish and sit down for awhile and go back and do more that’s what I need to do. You don’t have to do everything at one time. Although now things are harder than ever for me to accomplish I will not let this keep me down!! I can do some things on my good days then pay for it for 2 to 3 days after. But worth it! I also learned over the years a blessing I’ve gotten from having RSD. I was able to spend time with my children and raise them. I never realized what I was missing out on. Now being a widow for the last year I know life is ever changing, but I refuse to let life keep me pinned down always! Sure it isn’t easy on most days, but those days I feel I can go out or make myself do things I say “Yes to life with RSD!”. So “Here’s to more tolerable days!” my fellow RSDers.
Hi all! I’m Tammy and my RSD was diagnosed in 1995. I broke my ankle and injured my Achilles tendon 3 times in one year. I loved playing baseball since I was 7 years old. I so miss playing! I have always loved helping others and still do. I worked for many different doctors, PT and OT’s over the years as a Medical Insurance Specialist. Things have changed some since I’ve became disabled but I try to keep updated on various insurance and options as now I am helping myself with various needs. So why not share that information with others! I’ve been through so many treatments from medication, nerve blocks, injections, surgeries from nerve relief to spinal cord stimulator implants (SCS). My RSD has started spreading to other limb by 2001 had upgraded dual SCS. Since then the RSD has spread full body over the years. Lately the doctors say nothing else to up my dosage of medication and my next option is a medicated pump. I said no morphine they said oh no worries we would use dilaudid. I said well then I think I will wait for now. I love this site as this is the first group I came to at a time of need and the ladies have helped me so much. Although we do have men in the group too who have also been great! As of 2010 I am now a widow with kids all grown and out of the house. I searched to find myself again. I have to say Christa and Krista have been great motivators to me in helping others with what I know or can research and find out. Please feel free to ask me anything. Not afraid to say I don’t know but will look up or even call and try and find out for you. I know one thing; I will never let RSD keep me down!! There is life with RSD! Thus became my motto, “Here’s to more tolerable days!” =~ )