February 5, 2014
RSD/CRPS is the most painful rated disorder on the McGill Pain Scale Index, a little gem of knowledge I am sure you never forget! Sometimes it is hard to remember the other people without our condition who also suffer a great deal. I find I become so drawn into my own pain that I often miss things happening around me. I may miss the first bloom of spring or maybe a child crying because they have lost their parent. No matter how “significant” we perceive the item we missed, it may be the world to someone else. This is why it is important to make sure we also take a minute to look at the world around us.
The admin team at CPRS/RSD Doesn’t Own Me is a family in itself, with our own trials and tribulations. There are times we share the information publicly and other times we feel it would pull away from the importance of support we provide for our members. Despite these choices, we feel that you the members need to know who we are. We want to share a part of our lives with you. Every person on the admin team survives with a debilitating chronic pain condition! Many of us survive the roller coaster we call RSD/CRPS. We have our highs and lows, and days when we must step back to take care of ourselves so that we can be here to take care of you.
Over the coming weeks, we will feature different people from the admin team and some small facts about us. We volunteer our time and spoons to you and want you to feel you know who we are and what we are here to do! Please watch the Facebook page starting today to see our admins highlighted in all of their glory sharing a piece of their soul reaching out to all of you! You are the reason we do this! Never forget how important you are to us all!