Kylee Black

Kylee Black: Administrator, Support Advocate, New Zealand Rep, and Founder of Spiritual Sparkplugs

Kylee Black: Administrator, Support Advocate, New Zealand Rep, and Founder of Spiritual Sparkplugs

My name is Kylee Black and I’m a 27 year old girl living in New Zealand.

On the 10 November 2008 I had a kickboxing accident where I partially tore the hamstring and groin muscle in my left leg as well as over stretching the sciatic nerve. RSD appeared pretty much immediately, although it wasn’t officially diagnosed until January… For me the colour changes were immediate and things spiraled out of control pretty quickly… By the time I was diagnosed it has already spread. By March I was bed bound, by May I was diagnosed full body with organ involvement. I had complications in which overnight I lost complete use of my left hand side… I have had to fight hard to regain use and continue to fight for that use… I have had many different treatments, including low and high dose ketamine treatments… The high dose ketamine treatments got me out of being bed bound… Though their availability in my country is no longer…

This is a long as twisted journey… I will not let it beat me… I will continue to fight and push myself… RSD does not define who I am… I am determined to stay positive in this and do what I can… I want to make a difference! Together united we can beat this disease! We will win!!

For more info visit me at my journal site: www.caringbridge.org/visit/kyleeblack

Administrator, Support Advocate, New Zealand Rep, & Founder of Spiritual Sparkplugs

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