Hello, My name is Judy Halas. I am a 49 year old woman who has been afflicted with CRPS/RSD for seven years now . I developed this neurological pain disorder from an injury I sustained at my nursing job. Let me tell you what it’s like to switch roles from a nurse to a patient. It is probably one of the most enlightening experiences I have ever had, besides motherhood that is. I lost total control of myself. The pain was so excruciating that I had wanted to end my life at different times throughout this five year battle. I underwent ever known treatment and therapy that I could get my hands on to try and halt or reverse this horrible disorder. I was only able to make small advances and not one thing really worked well for me or lasted very long. My spirit began to fade. I had lost my ability to think clearly and independently due to the medications I had to take. I lost the will to keep a positive attitude and push on. I had to give up my 20 year nursing career and again I lost part of myself. I’d like to tell you what I have gained ! I have gained a sense that I am not any less of a person now because I am disabled. I have gained so many great RSD angels in my Life. I met Christa, one of our page founders through a support website for CRPS. It really changed my life. I finally took a long look at all the young people afflicted with this disease and saw how they had learned to overcome and endure the pain. I grew stronger by listening and understanding their intense will to not give in or give up. I learned that this disease does not define me. I am still a strong, loving and giving person despite my handicaps. I walk with a limp, slower and not as far. I sit longer and not as comfortable. I have had to change nearly every aspect of my life because of RSD/CRPS.
I have seen what it is liked to be looked at strangely for parking in a handicapped spot because I don’t look sick or handicapped. I know what it is like now to be judged by your peers and family for not measuring up. I have the new found knowledge of how to be even more empathetic and more accepting than I was prior to this change in my life. I have learned that my own feelings and my pain is my own . I can’t expect the rest of the world to understand what is is like to live in my body for a single minute. I have joined forces with these wonderful founders and administrators of this site to make others more aware of RSD/CRPS . In hopes that one day we can find a cure so no one else has to suffer . I don’t want to have to tell people what I have and see their blank stares because they have never heard of this before. I don’t want to have to teach my therapists, doctors or caregivers how best to treat me. I want them to know this already! I would like to take this opportunity to thank my loving husband and CRPS family for helping me push through my pain and find “positive lights” in my life.