This past summer I met a great group of people that truly cared about me. They took their time to get to know me and they started taking me back to church. I started learning that my life wasn’t over and that despite my disability I still had something to offer. So in August I decided to get baptized and I finally was able to do so the end of that month. The day I was baptized I felt a pull on my heart to do something about RSD and the lack of knowledge that I had encountered within the medical community and within the world in general. When I was able to be near a computer I started up RSD/CRPS Doesn’t Own Me, which just began as a fan group. I never thought that it would ever go farther then my small group of RSD Angels that I had met. I really wanted to spread awareness about RSD/CRPS world wide, but it truly started to help me and my fellow RSD Angels to stay inspired!
Since August RSD/CRPS Doesn’t Own Me has turned from a simple phrase to a way of life. Although I have RSD/CRPS I have realized how strong and how much of a wonderful woman I am. It allowed me to grow in my confidence in myself, and to start to love myself for who I am. Over the short 8 months since the birth and conception of RSD/CRPS Doesn’t Own Me we have grown into a website, we have sponsored and put on an RSD Angel Awareness month, and grown to an amazing 1000 members.
I come here to say that life is not over once you are diagnosed with RSD/CRPS. Life is only just beginning! Today is the first day of the rest of your life. Since starting down this positive road of letting RSD/CRPS know it Doesn’t Own Me I have met and become engaged to the most amazing caring man I have ever met in my life. I never thought a year ago, let alone two years ago when I became diagnosed with RSD, that I would be planning to get married in July. I have met the closest friends that I have ever met both here at home and online. My fellow RSD Angels who help run this group and website are truly the closest friends I have. I truly couldn’t have done any of this without the amount of support. Also I hope that anyone who is a part of this group and all RSD Angels that will ever be apart of this large group of amazing supporters and friends, will be inspired to spread awareness of the truth about RSD/CRPS.
Together we can keep chinking and breaking down the armor that RSD/CRPS has and we will eventually have our day in the sun. Someday we will be able to say there is a Cure for RSD/CRPS!
Again I say thank you to each and every one of you! For it is because of you we are here today!
Hugs and Low Pain Days,
Founder of RSD/CPRS Doesn’t Own Me
P.S. “Reach for the Stars Eventually Your Arm Will Stretch. If you fall short, reach with another person. Even then you are that much closer!”